CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
A myheart members’ video meeting is planned for Saturday, 19th October 2024 between 10am and 12pm. Meetings are free to attend and give members an opportunity
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in
By Gem O’Reilly It’s a funny thing being told you could potentially go into cardiac arrest for something you can’t necessarily see or feel. It’s
Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester): CRY’s Research
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to
CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers
A myheart members’ meeting was held at Friends House, 173-177 Euston Road, London NW1 2BJ, between 2pm-5pm on Saturday 16th March 2024. Please find the feedback
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young Friday October 20th
On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant
Dear myheart members, In this e-newsletter you can find information about: Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates.
Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00
