Amazing things are possible! by Thomas Morris
Our world fell apart 3 years ago when three of us Morris gang (Thomas, Xander and Jude) were diagnosed with a genetic critical heart condition called LQTS. Having never had major health issues before, to being told I was very lucky to be alive certainly changed my perspective on life. 🌅 Now several years later, […]
Spring National myheart meeting-Saturday,8th March, 2025
A myheart members’ meeting is planned at Friends House, 173-177 Euston Road, London NW1 2BJ, between 10am-12pm on Saturday 8th March 2025. Please find the registration form for the meeting below. There will be a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members can ask questions they have about their condition, […]
Dr Nim Jayaratne’s research interview
Recently, our series of ‘research update’ interviews have focused on the academic achievements of former CRY Research Fellows, reflecting on their impressive portfolio of published and peer-reviewed papers and subsequent research grants, awards and ultimately securing positions as Consultants in hospitals across the UK, often heading up cardiology departments and ICC’s (regional centres for Inherited […]
Online myheart meeting with Dr Sabiha Gati-Saturday, 19th October, 2024
A myheart members’ video meeting is planned for Saturday, 19th October 2024 between 10am and 12pm. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long […]
myheart hard copy newsletter-2023
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
624 Reasons Why by Joe McEwan
My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in 2022, have played sport pretty much my whole life and I love travel, playing guitar and art. I also had a sudden cardiac arrest at the age of 22. September […]
Never Miss a Beat
By Gem O’Reilly It’s a funny thing being told you could potentially go into cardiac arrest for something you can’t necessarily see or feel. It’s a surreal, intangible experience and very scary. That’s what happened to me when I was 16. I was diagnosed with Long QT Syndrome, which basically means my heart struggles to […]
How research can lead to review and potential reform for UK screening policy
Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester): CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the […]
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: April 29, 2024 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds […]
Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients
CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers and key decision makers and presenting findings at UK and international conferences. The issue around the impact of exercise and physical activity on young people living with a heart condition […]