Online myheart meeting with Dr Sabiha Gati
A myheart members’ video meeting is planned between 5pm-7pm on Saturday 3rd April, 2020. Registered members can start logging in from 4:45pm. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. […]
Brugada and Self-Isolation
Monday 16th March I celebrated my 12th re-birthday, re-birthday is a term that all cardiac arrest survivors use to celebrate surviving a cardiac arrest. I didn’t really celebrate it this year, maybe ‘cause of this underlying cloud that was shadowing the world. This cloud, this virus COVID-19/ Coronavirus, we first heard about this virus whilst […]
My heart stopped with no warning at all! by Jade Hobman
Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, […]
Revisions to the CredibleMeds Lists-March 2020
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: March 19, 2020 Re: Recent revisions to QTdrugs.org Lists Dear subscribers to CredibleMeds: Like you, we at CredibleMeds […]
CRY Ambassador, Ben Coleman, getting tested by CRY
CRY is thrilled to have a growing group of Ambassadors. This position was introduced for people who have achieved recognition in their chosen field, who can raise awareness of CRY and share our key messages and information with their followers. This includes Ben Coleman, a professional squash player who represents England. Ben turned professional in […]
Interview with Consultant Cardiologist Sabiha Gati
Dr Sabiha Gati, how is it different working with a young population with cardiac conditions? A typical day’s work involves assessing patients aged between 18 and 25 years old. The vast majority of individuals admitted or investigated in heart clinics are usually in their sixth decade onwards. Most of these individuals have age-related problems such […]
What’s new for 2020:myheart enews Jan-Feb 2020
Please find in this e-newsletter information on: New booklet on ablation Heart Month-February Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the UK National Screening Committee (NSC) CRY’s myheart cardiologist, Dr Michael Papadakis’ story Blog by myheart member, Amelia Longman Sue Jones to Film New Videos Upcoming myheart meeting Registration for CRY Heart of […]
Prof Michael Papadakis – Exercise in patients with Hypertrophic Cardiomyopathy
On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact of our research. CRY myheart cardiologist Prof Michael Papadakis spoke on CRY Research Fellow Dr Joyee Basu’s presentation, looking at exercise in patients with Hypertrophic Cardiomyopathy (HCM). He noted the importance […]
My heart condition’s 25th anniversary by Kerry Shephard
Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique […]
My allergic reaction saved my life..
I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me to the GP who said I had low blood pressure which probably explained the fainting. When I was around 11 I started to develop quite […]