My heart stopped with no warning at all! by Jade Hobman

Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, […]

Revisions to the CredibleMeds Lists-March 2020

Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: March 19, 2020 Re: Recent revisions to QTdrugs.org Lists Dear subscribers to CredibleMeds: Like you, we at CredibleMeds […]

CRY Ambassador, Ben Coleman, getting tested by CRY

CRY is thrilled to have a growing group of Ambassadors. This position was introduced for people who have achieved recognition in their chosen field, who can raise awareness of CRY and share our key messages and information with their followers. This includes Ben Coleman, a professional squash player who represents England. Ben turned professional in […]

Interview with Consultant Cardiologist Sabiha Gati

Dr Sabiha Gati, how is it different working with a young population with cardiac conditions? A typical day’s work involves assessing patients aged between 18 and 25 years old. The vast majority of individuals admitted or investigated in heart clinics are usually in their sixth decade onwards. Most of these individuals have age-related problems such […]

What’s new for 2020:myheart enews Jan-Feb 2020

Please find in this e-newsletter information on: New booklet on ablation Heart Month-February Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the UK National Screening Committee (NSC) CRY’s myheart cardiologist, Dr Michael Papadakis’ story Blog by myheart member, Amelia Longman Sue Jones to Film New Videos Upcoming myheart meeting Registration for CRY Heart of […]

Prof Michael Papadakis – Exercise in patients with Hypertrophic Cardiomyopathy

On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact of our research.  CRY myheart cardiologist Prof Michael Papadakis spoke on CRY Research Fellow Dr Joyee Basu’s presentation, looking at exercise in patients with Hypertrophic Cardiomyopathy (HCM). He noted the importance […]

My heart condition’s 25th anniversary by Kerry Shephard

Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique […]

My allergic reaction saved my life..

I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me to the GP who said I had low blood pressure which probably explained the fainting.  When I was around 11 I started to develop quite […]

CRY’s myheart cardiologist, Dr Michael Papadakis’ story

Michael Papadakis cannot remember a time that he did not want to be a doctor. His mother, devoted to her husband and children, was a dynamic business woman who proved a tough taskmistress and, from the start of his early days at his primary school in Chania, Crete, emphasised that she expected an 80% pass […]

Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the UK National Screening Committee (NSC) relating to systematic population screening for cardiac conditions associated with young sudden cardiac death (YSCD)

“Just prior to Christmas Day, the UK National Screening Committee published its conclusion to the consultation reconfirming the UK NSC does not recommend systematic population screening for cardiac conditions associated with Sudden Cardiac Death in the young. No signs or symptoms “The first point to address is that, as a charity driven by a mission […]

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