Volunteering
We are so grateful to our supporters who offer up their time. From being an official CRY ‘cheerer’ at a mass participation event, helping to marshal the route at the CRY Heart of London Bridges Walk, holding an awareness stall, sharing our key messages on social media, to volunteering at a UK festival – there […]
CRY Ambassador – Calum Haggett
The last thing on Calum Haggett’s mind was a potential heart problem, let alone open heart surgery. As a young, fit athlete who had just been selected to play for England in the Under-19 Cricket World Cup in New Zealand, he made the assumption that most young people do – I feel healthy, so why […]
CRY Ambassadors – Jade Moore
CRY’s wealth of support continues to grow in new ways. For years our Patrons have supported us, accompanying the valued attention that celebrity brings with efforts to raise funds and awareness that we have always greatly appreciated. Now, we’re expanding this kind of backing with a new role: CRY Ambassadors. CRY is looking for individuals […]
Interview with Dr Sabiha Gati about her review paper, ‘Exercise recommendations in patients with valvular disease’
Sabiha started as a CRY Research Fellow in 2010. She was the first CRY Fellow to complete a PhD, winning several awards and prizes for her research. After completing her PhD and specialist training, Sabiha embarked on a 12 month fellowship training in cardiac MRI at Royal Brompton Hospital and subsequently worked as a Consultant […]
myheart Newsletter 2018
A digital copy of the myheart Newsletter 2018 is now available to read here on Issuu. Catch up on the latest news and updates, research news, myheart meetings and read #myheartmystory’s from members.
CredibleMeds for members with Long QT
Members with long QT syndrome may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: On January 14th, AZCERT added the anticancer drug Glasdegib (Daurismo) to the Possible Risk of torsades de […]
My journey with ALCAPA – My Story by Serena Freeman
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when I had a sudden cardiac arrest. The people around me called for an ambulance and one of the men was then guided through CPR and […]
MyHeart enewsletter December 2018 – February 2019
In this e-newsletter you can find information about: CRY Heart of London Bridges Walk Upcoming myheart meeting Heart Month (February) Idiopathic Polymorphic Ventricular Tachycardia, by Hollie Bell NHS England Congenital Heart Disease Peer Review Visit Programme Private Facebook Group Read the full newsletter and subscribe here
NHS England seek Patients and Carers to work with the Quality Surveillance Team on Congenital Heart Disease Peer Review Visit Programme
Did you know that, as a patient with congenital heart disease (CHD) or carer for adults/children with this condition, you can join a team who work to help maintain and improve care in our hospitals? The Quality Surveillance Team (QST), NHS England is about to embark on a comprehensive peer review visit cycle May – […]
CRY Heart of London Bridges Walk 2019 – 23rd June
Registration is open and we have supporters signing up everyday! Join CRY and the 100 people already signed up for a chance to connect and remember. New for 2019:New venue – This year’s event will be starting and finishing in Southwark Park, near the Band Stand and is approximately 5.5 miles long. The new venue enables us to […]