NHS England seek Patients and Carers to work with the Quality Surveillance Team on Congenital Heart Disease Peer Review Visit Programme
Did you know that, as a patient with congenital heart disease (CHD) or carer for adults/children with this condition, you can join a team who work to help maintain and improve care in our hospitals? The Quality Surveillance Team (QST), NHS England is about to embark on a comprehensive peer review visit cycle May – […]
CRY Heart of London Bridges Walk 2019 – 23rd June
Registration is open and we have supporters signing up everyday! Join CRY and the 100 people already signed up for a chance to connect and remember. New for 2019:New venue – This year’s event will be starting and finishing in Southwark Park, near the Band Stand and is approximately 5.5 miles long. The new venue enables us to […]
Idiopathic Polymorphic Ventricular Tachycardia – My Story by Hollie Bell
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting it down to post natal depression and anxiety. I would only get the funny palpitations about 10 days before my period was due, and then […]
myheart e-newsletter October – November 2018
In this e-newsletter you can find information about: Fundraising and Raising Awareness by Members of the myheart network New videos filmed with myheart Cardiologist Dr Michael Papadakis Credible Meds update Annual myheart newsletter Private myheart Facebook group Read the full enews here. To register to receive the myheart e-newsletter to be kept up to date with any news or information, […]
Wedding gift donations for CRY
I recently got married and gave guests the option of donating to CRY as part of my gift list, and raised £120 from several of my guests. Mallory Brand You can read Mallory’s story of being diagnosed with Wolff Parkinson White Syndrome here
myheart enewsletter July – September 2018
Thank you to all members who submitted questions through the myheart website, for us to film with myheart cardiologist Dr Michael Papadakis. Last month we posted the most recent FAQ videos, where Michael answered some of the questions that members of the network have about ablation procedures. In this e-newsletter you can find information about: Fundraising and […]
West Midlands CARE Team lecture
Being a University Student, the only public speaking I’ve ever done has been in front of my classmates and even then, I knew who most of them were. When the opportunity came about to speak at one of the West Midlands CARE Team lectures, I was nervous, but I know I just have to keep […]
Channel Pool Swim for CRY
In 2015 the CRY heart screening at the University of Chester found that I had a congenital heart defect called an ‘atrial septal defect’ a.k.a. a hole in my heart nearly 3cm wide! I had a series of tests based out of my local hospital over the next 12 months and in 2017 had keyhole […]
5km Colour Run for CRY
I suffered one cardiac arrest out of hospital in my sleep, and two in hospital cardiac arrests at the end of May. I was 32. After having palpitations for a year and a half and never really been checked properly, it was a bit of a shock. I have a 2 and a half year […]
Dr Michael Papadakis Answers Member Questions
myheart cardiologist, Dr Michael Papadakis, has answered member questions about ablation over on the myheart YouTube channel. More videos