Ablation and the Road to recovery
#TEDICATED – CHAPTER 3 – CARDIAC ABLATION AND THE ROAD TO RECOVERY It has been some 8 months since my diagnosis of Wolff-Parkinson-White Syndrome. (see previous post) A lot has happened in this time, which have put a temporary hold on a few activities. This post is about my Catheter Ablation treatment, how it went […]
My experience of CRY Heart of London Bridges Walk-24th June, 2018 by Zenia Selby
This was just my second CRY Heart of London Bridges Walk, and for the second year in a row we had a glorious sunny day for it! Last year my mum and sister joined me and my partner for the walk: this year my partner’s parents came along too. We hope to increase our group […]
Travel Insurance for individuals with pre-existing cardiac conditions
We often get asked recommendations for travel insurance providers and we appreciate its not easy to get travel insurance when you have a pre-existing condition. We are aware of the following insurance companies that can offer medical cover for people with cardiac conditions. Whilst CRY does not recommend or endorse any of these companies, we […]
Joe Street and Evan Phillips’ Swansea to London Run for friend and myheart member, Tim Butt
After a close friend of ours, Tim Butt, suffered a near-fatal cardiac arrest we decided it’d be a good idea to go for a run. Setting off from the Liberty Stadium in Swansea, we spent two weeks averaging fifteen miles per day across South Wales and through England all the way to London before then […]
My condition made me realise how precious life is!
June will mark 4 years since I first discovered something wasn’t right. I was playing pool at the time in a competition match for prize money. There was a lot of pressure and my body could feel it. I was winning 1-0 and all of a sudden I started to go dizzy so I decided […]
The beginning of surreal chain of events! by Adam Brown
It was a big day for me, it was the day I played my money match for a few thousand pound prize. It’s safe to say I felt the pressure. After going 1-0 up in a race to 15 games, things started to turn ugly. Firstly, I started to get confused about what I would […]
I feel like me again by Nicole McShane
12 years ago, last year, last week or even yesterday; it doesn’t matter how long ago it was when they died of an undiagnosed genetic heart condition, unfortunately, they’re still not here today and the pain of losing them most likely won’t have subsided. However as time moves on, you’ll remember what it feels like […]
myheart hard copy newsletter-2017
Read my heart hard copy newsletter here.
March-April myheart enewsletter
Thank you to all who helped raise awareness of Cardiac Risk in the Young (CRY) and myheart during February for Heart Month. The hard copy newsletter featuring last year’s activities will be mailed to you shortly. Please find in this newsletter information on: CRY Heart of London Bridges Walk 2018 – registration is now open! Fundraising and […]
Brugada Syndrome Diaries
When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This […]