I suffered a cardiac arrest at my sister’s wedding!! by Carly Williams
I have no diagnosis for my SCA yet. It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, […]
I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called […]
CRY Fundraising Adventure
PLOP! I slipped over and fell hard on my bottom. The ground was wet and cold on this side of Hadrian’s Wall, and it had been raining solidly for six hours. My partner handed me a slab of Kendal Mint Cake, and as I munched it, sniffling, a hearty Hexham native strode past us. “Having […]
My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know […]
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had […]
A simple heart screening could save your life! by Nicola Kenton
I am a geography graduate of the University of Birmingham and the former online editor of the sports section of Redbrick – the university’s paper. “Have you ever heard of Fabrice Muamba?” was the message my doctor greeted with me, not knowing I was a sports fan but the answer was of course yes, “It’s […]
I suffered a cardiac arrest four years ago but I am still undiagnosed! by Lee Gerrard
I was 32 when I had my cardiac arrest. I was with my best mate and my fiancee who was 8 months pregnant. I have no recollection of the day, no symptoms and no chest pains. I remember pretty much everything up until the attack. I have had various tests to see a cause but […]
myheart enewsletter July-Sept 2017
Dear myheart members Please find in this e-newsletter information on: Raising Awareness and Funds by myheart members myheart in the news/on TV Activity on the website CRY Raising Awareness Week Upcoming myheart meeting Read the full enewsletter here.
Fiction vs Reality of Brugada
When I read that Eastenders had done a Brugada Storyline with one of their characters, I decided to check it out on BBC Iplayer. Many years ago Eastenders had a slogan ‘Everyone Talking About It’ oddly for me nobody was talking about it. I didn’t get messages or comments from friends or family, I came across […]
I didn’t know I had suffered a cardiac arrest until 3 days later…by Lucy Patey
In February 2017, my wife, Zoe, our 13-month-old daughter, Frankie-Louisa, and I were visiting a friend in Lincoln. We had a nice dinner and I had one beer. Then, we went to bed. I woke up at 3am to go to the toilet but instead collapsed on the floor. The next thing I remember was […]