Making Sure
As it approaches a year since I had my ablation, I’m coming to the end of the extra tests my cardiologists wanted me to have to make sure my heart condition had been completely fixed. I had two exercise tests and an echo, which all seemed to show normal results, so I’m very much hoping […]
WPW Recover and running the London Marathon
After becoming active and running my first half marathon in October 2014, I became unwell suffering from dizziness, tiredness and palpitations. A few weeks later , after a number of tests, the doctors told me they thought I had a condition called Wolff Parkinson White Syndrome. I’d never heard of it and at the time […]
Living with ARVC and an ICD
6 days after my 26th birthday I went for a run one evening (15th June 2016) with a friend and a group of runners and I suffered a cardiac arrest after finishing the run. I have no memory of it it’s what I’ve been told by others. I had CPR performed on me at the […]
Girl, 17, fitted with life-saving pacemaker after school screening spots major heart defect
The Sun – 8th October 2016 A student told she had a major heart defect after attending a school screening has been fitted with a life-saving pacemaker – at the age of just 17. Read more
myheart e-newsletter Jun-Aug
Dear myheart members Please find in this newsletter: Bridges Walk 2016 Upcoming myheart meeting CRY Cake Bake and National Awareness Week Stand at the Congenital Heart Disease Conference Activity on the myheart website Feedback Social Media Read the full newsletter here.
Stand at the Congenital Heart Disease Conference 2016
This established annual course runs for nurses and Allied Health Practitioners working with infants, children and young people who have congenital heart disease and related cardiac conditions. The course is run collaboratively by the Practice Educators and Specialist Staff of the London Congenital Heart Centres and attracts attendees from Cardiac Centres in the UK, Ireland, […]
CRY Heart of London Bridges Walk 2016
Sunday, 26th June witnessed a huge number of walkers gathered at London’s scenic green space, Potters Fields Park, with 1,266 walkers registering to take part in CRY’s 10th annual Heart of London Bridges Walk. myheart members, L-R- Mhairi Morrison, Laura Gibbs and Amanda Okunola As ever, it was incredibly moving to see so […]
A few more tests
For those of you following my story, you will be aware that I went to the doctor worried that my WPW had returned. Since then, I had another consultation with a cardiologist who confirmed that it wasn’t WPW, but explained that what I was feeling was most likely an ectopic beat. This is perfectly normal, […]
myheart Apr-May e-newsletter
Dear myheart members We would like to give a warm welcome to our 50 new members who have joined myheart since January, many of whom have kindly said that they have found the myheart website with information about conditions and personal stories from other members very useful. We are very grateful to our members who […]
WPW – the risk of return
I had been doing pretty well in my training, but on a couple of runs my heart went a little faster than usual. To be on the safe side, I referred myself for an ECG. I took the result to my GP, who took a look, said it seemed fine, but then paused. He looked […]