Life with LQTS and LVNC by Abi Edwards
October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little did I know that that test would be the beginning of a whole new journey in my life. I was told that they had picked up an abnormality and they […]
Every Cloud by Thomas Flanighan
After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a Commercial Pilot. The flying medical involved an ECG which showed abnormal results. At the time, I was not concerned as the Doctor who performed it was almost certain it was […]
CRY Heart of London Bridges Walk 2021-Registration Open
We are delighted to announce that registration for CRY Heart of London Bridges Walk is now open. This year is a very special year for our flagship event as it marks the 15th anniversary of the walk. This is an incredible milestone and we would love for you to join us on Sunday, 27th June […]
Update from Credible Meds
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. May 4, 2021 Re: Revision to the QTdrugs List We are writing to inform you that three new drugs have been added and one removed from the Possible Risk of TdP category. Two drugs used for […]
It’s Scarier Not to Die by Jamie Poole
For the first time in 12 years, I experienced my first incident of an inappropriate shock. Not just one, but five, one after the other. Bang. Bang. Bang. Bang. Bang. To say it was painful would be a gross understatement. It was a combination of the most painful experience of my life, mixed with the […]
Update from CredibleMeds
March 31, 2021 Re: Revision to the QTdrugs List We are writing to inform you that two newly marketed drugs in the US, Ponesimod for treatment of multiple sclerosis and Voclosporin for treatment of lupus nephritis, have been added to the Possible Risk of TdP category. Also, if you haven’t already, we hope you will try AZCERT’s web-based decision support […]
myheart enews-Jan-Mar 2021
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these unprecedented times. Please find in this newsletter information on: CRY’s Expert Team: Prof Sanjay Sharma’s story FAQ’s about myocarditis with Dr Sabiha Gati Webinar on CRY’s Research by Dr Michael Papadakis […]
Online myheart meeting with Dr Sabiha Gati
A myheart members’ video meeting was held between 1pm-3pm on Saturday, 24th April 2021. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you […]
We thought something was wrong with ECG leads or monitor but… Blog by Jess-Lee Welch
I was in my final year of uni studying Sport and Exercise Science and we were in the lab doing ECGs on one another. When my lecturer (Dr David Oxborough) came to check on mine, he thought something was wrong with the monitor or leads. Long story short, the monitor wasn’t broken. After staying behind […]
I am forever grateful to the GP who saved my life! Blog by Roxy Ball
From being little I always remember I found running and PE hard. I was good at rounders because I could hit the ball and then race around the posts! But everything else I was bad at. I never had any stamina! I always got worried about things too, it would just come on. I used […]