Running in the Rain

The Easter weekend brought chocolate for many, hot cross buns for some, but for me it brought a 30k run through the wrath of Storm Katie! It was a hard, hilly run, but made infinitely better by the kindness of a family living in a tiny sandstone Cotswolds village who re-filled by water bottle for me when I reached the

Hearts in Haringey

I love long distance running. Like, really long distances. So when I was diagnosed with Wolff Parkinson White syndrome, it was very difficult to have to cut down to just the odd 5k, constantly monitoring my heart rate as I ran. But in November, I had an operation that fixed my heart condition, and to celebrate I am going to

Chloe Harris on getting a reveal device

My name is Chloe and in April 2006 I lost my half-sister to ARVC (arrhythmogenic right ventricular cardiomyopathy). Like so many other ordinary families, our loss was our first introduction to the reality that so many young people lose their lives to this type of condition that so regularly goes undetected. In last nine years I have travelled once or

Paul Cowling-DCM

Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t work as it should. Or

Joseph Tanner talks about having an ICD implanted

Watch myheart member, Joseph Tanner, talk about his experience of having an ICD implanted. Hi, my name is Joseph tanner. I was diagnosed with Brugada syndrome in 2008 and I was told that I was going to have an ICD implanted. And at first thought I was really scared. I didn’t know what was going to happen. And on the

Tim Butt talks about his electrophysiological procedure (EPS)

Watch myheart member, Tim Butt, talk about an electrophysiological procedure he has recently had. https://youtu.be/DrmIjPbUsUU?list=PLgKrVHLO1-1XzUO315YuSl0XIzHmjYQ2Q

Miccoli Tour – Intu Chapelfield, Norwich 8th-9th November 2014

Miccoli’s tenth weekend of their tour was in Norwich’s Intu Chapelfield shopping centre and was a very busy one for the band. The family trio had a really positive response from the Norwich shoppers and meant they had the opportunity to promote CRY and the band to a lot of people throughout the weekend. Francesca, Adriano and Alessandro really enjoyed

Miccoli Tour – Intu Shopping Centre, Derby 22nd-23rd November 2014

Miccoli’s twelth and final weekend of their tour during 2014 took them to Derby where they performed at the Intu Shopping Centre at West Mall. There was a great response to their attendance and the band were able to raise vital awareness in the town. “Derby was a perfect place to end this year’s C-R-Y/Miccoli Awareness tour, the response was

YBFIT by Paula Beck

My brother died suddenly, aged 31, in Australia. He was very fit and healthy. As a result, my family and I had to undergo genetic heart testing. Some of my family, including myself, were diagnosed with a hereditary heart condition called Brugada syndrome. Through this I was introduced to Cardiac Risk in the Young (CRY) – who support families affected

Living with Brugada syndrome by Paula Beck

Watch myheart member Paula Beck speak with Professor Sharma about having Brugada syndrome. Understanding the syndrome and the effects it has. Watch Paula debate with CRY myheart cardiologist, pills Dr Michael Papadakis along with another myheart member, generic Joseph Tanner on exercising with an ICD below.#