My journey with ALCAPA – My Story by Serena Freeman
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when I had a sudden cardiac arrest. The people around me called for an ambulance and one of the men was then guided through CPR and without any training performed it
Idiopathic Polymorphic Ventricular Tachycardia – My Story by Hollie Bell
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting it down to post natal depression and anxiety. I would only get the funny palpitations about 10 days before my period was due, and then they would stop once it
I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called but he suggested it was
My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know that I had come around.
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had a Fontan surgery when I
Super Ventricular Tachycardia (SVT) by Samantha McLaren
I have been suffering from SVT attacks since March 2010 when I suddenly collapsed at work. I was taken to A&E for tests, my heart rate was very high reaching over 200BPM, I remember being very scared as I was never in hospital and was always fit and healthy. They gave me a 6mg jag of adenosine and it slowed
Paul Cowling-DCM
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t work as it should. Or
Zenia Selby- earlier diagnosed with WPW
I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would stop it. I was in the middle of a wood when it happened, exactly halfway through the run and so about 2.5k away from home. After about 10 minutes of resting,
Paula Beck
Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at St George’s Hospital. I am a mum of two, one of four siblings and was only 30 when diagnosed. Our family underwent tests after my brother (Craig) suddenly died in
Alessandro Miccoli
Alessandro Miccoli wrote his story to be included in the myheart booklet which was launched in November, 2013. It wasn’t until the end of 2012 that a journalist first introduced me to the charity CRY. I quickly became aware of the amazing work they do in helping promote awareness of heart conditions in the young. Since my early teens, heart