Emma Jackson
Emma Jackson wrote her story to be included in the myheart booklet which was launched in November, 2013. I never liked sports when I was younger and was never any good. I remember having strange missed beats, tiredness and slight dizziness but thought this was normal. It was pure chance that a doctor noticed a heart ‘murmur’ prior to knee
Sian Donnelly
Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly whilst playing volleyball at our hotel. After two post-mortems we were told that he had died from SADS (sudden adult death syndrome). At the time, we were completely unaware of any
Chris Currie
Chris Currie wrote his story to be included in the myheart booklet which was launched in November, 2013. I was 24 and having the time of my life travelling around the world with two friends. We had made it to Bangkok when we found ourselves in a bar and I literally keeled over. I am only here today because I
Lucy Challis
Lucy Challis wrote her story to be included in the myheart booklet which was launched in November, 2013. On Sunday 29th January 2006, my older brother Stuart, age 25, collapsed and died playing football. I was 23 and my other brother was 27. Stuart was the fittest of the three of us. He had no symptoms. His post-mortem, confirmed by
Mallory Brand
Mallory Brand wrote her story to be included in the myheart booklet which was launched in November, 2013. I discovered I had Wolff-Parkinson-White (WPW) syndrome by chance. I manage events and exhibitions for a marketing agency in London. In July 2012, I was flying to Boston when I felt unwell during the flight, collapsed and after receiving oxygen from the
James Bailey
James Bailey wrote his story to be included in the myheart booklet which was launched in November, 2013. I was pumped up for the game. The adrenaline was rushing through my body. I couldn’t wait for kick-off but as soon as the whistle blew, my body reacted in a way it had never done before. My heart beating faster than
Antony Eames
Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school sport or go out in
Louise Dee
Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing an alarm clock and realised it was my mother’s for work, so I got out of bed and went to turn the alarm off. When I went into her bedroom I turned the alarm off
Stacy
Living with Wolff Parkinson White syndrome Hi, my name is Stacy and I am 19 years old. I was a very healthy child and was always very active and played netball every week. I remember having moments throughout my childhood where I would feel very odd and feel lightheaded and spaced out but we thought nothing of it. In October
Jonny Goode
Living with long QT syndrome I love Sport! Any kind of sport and ever since I remember I have spent most of my spare time either hitting a ball, pedalling a bike or running around somewhere. It came as a great shock to me when I was diagnosed with long QT syndrome at the age of 23. The way I