I have no diagnosis for my SCA yet.
It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, I told my friend I felt dizzy and then as soon as I sat down at the end I collapsed onto her lap.
A wedding guest and my two cousins were first aid trained so as soon as everyone realised I wasn’t breathing, they started CPR, I was also so lucky as the hotel had a defibrillator which they used to administer one shock which worked. The hotel was in London and the ambulance arrived in 8 and a half minutes and I was taken to Guys and St Thomas’ and put in an induced coma for 24 hours.
I was so lucky and was left with no lasting memory problems. I just can’t remember a few days around the event.
About 3 weeks later, once they had carried out a number of tests, they fitted an S-ICD. I also now take beta- blockers.
I am pretty much back to normal now apart from still very tired at times and anxious too after what has happened.
Hiya, thanks, I am still waiting for a diagnosis I have recently had a blood test for genetics and am seeing my cardiologist again this week and then in January.
The ICD does help and I am gradually returning to normal!
I have also started a charity to raise money for defibrillators in school and so far we have supplied one school with a defibrillator and ordered a further 3 which we will be placing after Christmas!
I hope you are well 🙂
That’s amazing work, I really think it should be mandatory for any public service,especially schools to have one.I helped raise some for a local sports venue.Keep up the good work 👍
If you don’t mind me asking, what tests have they done?
I’m hoping to see my electrophysiologist soon to see if there have been any changes since my ablation.
How do you feel in yourself? I get very anxious when my heart rate rises 😬
Hi Carly,
This must be scary to live with, but hope the ICD provides some reassurance for you.
Hope you get a diagnosis soon and you feel better in yourself.