CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
My name is Kaitlin Lawrence – I was an elite netball athlete, playing in the Scotland international senior squad for the past 3 seasons, training
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young Friday October 20th
On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant
Dear myheart members, In this e-newsletter you can find information about: Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates.
Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00
It was October 2021 – I’d recently just come back off holiday abroad for my 21st birthday and I wasn’t feeling myself at all. I
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the
A myheart members’ video meeting was held on Saturday, 4th November, 2023. Meetings are free to attend and give members an opportunity to meet and discuss
CRY’s Research Fellows – both past and present – spend much of their time writing and submitting manuscripts based on their projects as well as
This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. June 26, 2023
