CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
A myheart members’ video meeting is planned for Saturday, 19th October 2024 between 10am and 12pm. Meetings are free to attend and give members an opportunity
It was October 2021 – I’d recently just come back off holiday abroad for my 21st birthday and I wasn’t feeling myself at all. I
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the
A myheart members’ video meeting was held on Saturday, 4th November, 2023. Meetings are free to attend and give members an opportunity to meet and discuss
CRY’s Research Fellows – both past and present – spend much of their time writing and submitting manuscripts based on their projects as well as
This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. June 26, 2023
The impact of exercise and physical activity on young people living with a heart condition is an issue that often comes up at myheart meetings
After a few successful years, the CRY Conference was held online for the third time in 2022. On October 20th and 21st, the conference was
During Heart Month 2023, CRY launched ‘why do I support CRY?’. The campaign aimed to personify and tell the stories behind CRY. We asked our
A myheart members’ meeting was held at Friends House, in London on Saturday 20th May, 2023. The meeting involved a Q and A session with
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. February 21, 2023
