I thought I would be in and out in 10 mins after having an ECG but… by Laura Harris
My initial ECG picked up some abnormalities so I was asked to wait and was then given an echocardiogram. I was seen by the consultant and told that my echocardiogram had picked up that I had mild aortic regurgitation
The second chance at life has made me appreciate how delicate life really is…by Emma Green
Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.
Everyone should have a choice to get screened! by Harry Trowbridge
In April 2019, at just 15 years old and in my GCSE year, my life took an unexpected turn. I started experiencing a series of unexplained symptoms that left both me and the doctors puzzled. The symptoms, which seemed random and unrelated, included skin lesions on my legs and feet, severe muscle pain in my lower limbs, and at times, an inability to walk.
myheart hard copy newsletter-2023
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
How research can lead to review and potential reform for UK screening policy
Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester):
CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the findings they present at UK and international conferences.
Paula Beck
Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at St George’s Hospital. I am a mum of two, one of four siblings and was only 30 when diagnosed. Our family underwent tests after my brother (Craig) suddenly died in
