Rob Jackson
Living with arrhythmogenic right ventricular cardiomyopathy (ARVC) I am a 31 year old Sergeant in the Army Air Corps and until recently was a Lynx Helicopter pilot and aircraft commander operating in Northern Ireland. I joined the Army at 18 and have spent the past 12 years living an active, healthy lifestyle as a soldier. […]
Barry Hooton
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition This story comes from two people – me, Anna (aged 17), a.k.a. “the girlfriend” and Barry (aged 23), a.k.a. “the mystery.” Its a long story, but perhaps may give hope to those who are also undiagnosed just like Barry. This story begins on June […]
Ian Tunnell
Living with Wolff Parkinson White syndrome I would like to recount the circumstances surrounding my son’s experience of Wolff Parkinson White syndrome (WPW) in the hope that other young people, particularly students, will take heed and (a) register with a GP, and (b) go to see them when they’re not well. We had taken Ian […]
Andy Perry
Living with hypertrophic cardiomyopathy My name is Andy. I’m now 38 and at the tender age of 7 after dental treatment, I was ill and taken to the local hospital. After several tests they diagnosed me with a heart murmur. Several years later, attending senior school aged 11, I was taken ill doing sports. My […]
Debra Whiting
Living with right ventricle outflow tract tachycardia (RVOT-T) I was always really sporty when I was younger. I used to be in the netball team at school and represented my county at swimming and horse riding. I did occasionally used to get a flutter in my heart after I had really exerted myself but I […]
Paul Cooper
Living with atrial fibrillation My story began 19 years ago – I am 39 now. I was out with some mates one night, when I felt a funny ‘butterfly’ feeling in my chest – it felt like my heart was racing. That night I went to the hospital with my mate and they did an ECG. My heart […]
David Hillson
Living with suspected arrhythmogenic right ventricular cardiomyopathy (ARVC) In February 2008 I was out running with a friend. It was bitterly cold and I had not run over the Christmas period so this run was my attempt to ‘get back into it’! I had always been fairly healthy, played football all my life (and rugby […]
Lucy Patey
Living With long QT syndrome I have always been a fit and active person, participating in many sporting activities – two of which were hockey and horse riding, family passions that I inherited. During my teenage years I competed at top level both on horseback and on the hockey field. Looking back, I was given […]
Ellie Brogan
Living with Wolff Parkinson White syndrome My name is Ellie Brogan, I am 15 years old and suffer from Wolff Parkinson White syndrome (WPW). I really want to raise money for your charity and thought I would start by telling you my story and the reason why I want to raise money. When I was 7 years old, […]
Claire Herridge
Living with left ventricular wall abnormality A year and a half ago, when I was 34, I was out running when I experienced heart palpitations, chest pain and shortness of breath. I was taken by ambulance to Southampton General Hospital. This was a shock to me as I am a PE teacher and have always […]