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Sian Donnelly

Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly whilst playing volleyball at our hotel. After two post-mortems we were told that he had died from SADS (sudden adult death syndrome). At the time, we were completely unaware of any

Chris Currie

Chris Currie wrote his story to be included in the myheart booklet which was launched in November, 2013. I was 24 and having the time of my life travelling around the world with two friends. We had made it to Bangkok when we found ourselves in a bar and I literally keeled over. I am only here today because I

Lucy Challis

Lucy Challis wrote her story to be included in the myheart booklet which was launched in November, 2013. On Sunday 29th January 2006, my older brother Stuart, age 25, collapsed and died playing football. I was 23 and my other brother was 27. Stuart was the fittest of the three of us. He had no symptoms. His post-mortem, confirmed by

Living with Brugada syndrome – Sarah Bond

Living with Brugada syndrome I’m Sarah. In January 2012 I was diagnosed with a heart condition known as Brugada syndrome, something that I have had since birth yet was completely unaware of – living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my wonderful husband James. Looking back

Living with hypertrophic cardiomyopathy – Danielle Cummings

Living with hypertrophic cardiomyopathy I was diagnosed with hypertrophic cardiomyopathy as a baby. My dad and the majority of his family suffered from the disease. It was my parents’ decision for me to undergo genetic testing, which came back positive for having the gene but not the disease. While growing up I had biannual checkups at Great Ormond Street Hospital,

Emmerson Hird

On Wednesday 6th June 2012 my 17 year old nephew Emmerson Hird survived a cardiac arrest. Emmerson had been playing upstairs on his X-box with his girlfriend Micha. As he went to get up he fell down onto her. At first she thought he was messing about but quickly realised something was wrong and shouted for Emmerson’s brother. Emmerson had

Living with hypertrophic cardiomyopathy – Dan Reeves

Living with hypertrophic cardiomyopathy December 3rd 2010 started out as any other normal day (although, when I look back now it’s as if the day was already planned out). School was closed as the weather had been bad all week and buses couldn’t get through. I had been at work that morning but as the snow was so bad I

Living with Brugada – Bradley Farrow

Living with Brugada I did not realise that anything was wrong with me. Occasionally I would notice that my heart seemed to be going fast like it does when you’ve just been running, but I would not have been running. I didn’t think anything of it as it didn’t bother me and at 15 why would I think there was