Paul Cowling-DCM
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t […]
Joseph Tanner talks about having an ICD implanted
Watch myheart member, Joseph Tanner, talk about his experience of having an ICD implanted. Hi, my name is Joseph tanner. I was diagnosed with Brugada syndrome in 2008 and I was told that I was going to have an ICD implanted. And at first thought I was really scared. I didn’t know what was going […]
Tim Butt talks about his electrophysiological procedure (EPS)
Watch myheart member, Tim Butt, talk about an electrophysiological procedure he has recently had.
Joseph Tanner talks about doing the Brighton Marathon
myheart member, Joseph Tanner, talks about his experience of taking part in the Brighton Marathon, 2015 below. This story begins on Sunday 16 March 2008; I entered the Hastings Half Marathon. The week before the half marathon I had a cold, and at the time I didn’t think much of it. On race-day I felt […]
Paula Beck
Living with Brugada syndrome Watch myheart member Paula Beck speak with Professor Sharma about having Brugada syndrome below.
Chris Currie
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition Watch myheart member Chris Currie go through test and speak with Professor Sharma about having an ICD and undiagnosed condition below.
Rachael Marchant
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition At the age of 22 I noticed my heart seemed to ‘jump’ around and beat in an unusual way. I contacted my GP on a particularly bad day and was referred to a cardiologist. I spent 5 years under the cardiologists care and received […]
Sarah Bond
Living with Brugada syndrome I’m Sarah. In January 2012 I was diagnosed with a heart condition known as Brugada syndrome, something that I have had since birth yet was completely unaware of – living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my […]
Danielle Cummings
Living with hypertrophic cardiomyopathy I was diagnosed with hypertrophic cardiomyopathy as a baby. My dad and the majority of his family suffered from the disease. It was my parents’ decision for me to undergo genetic testing, which came back positive for having the gene but not the disease. While growing up I had biannual checkups […]
Emmerson Hird
On Wednesday 6th June 2012 my 17 year old nephew Emmerson Hird survived a cardiac arrest. Emmerson had been playing upstairs on his X-box with his girlfriend Micha. As he went to get up he fell down onto her. At first she thought he was messing about but quickly realised something was wrong and shouted […]